EPICOM

More than 3 million people are estimated to live with Inflammatory bowel disease (IBD). Incidences are increasing in the Western world and IBD is as frequent as Insulin Dependent Diabetes.

Developed for the European Crohn’s & Colitis Organization – Epidemiology Committee Database. This European trial in 24 countries representing adult and pediatric inception cohorts from 15 Western and 8 Eastern European countries and 1 Asian country will primarily aim at description of differences in Environmental factors. Differences in the 1 year’s follow-up regarding Disease Course, Medical treatment, Surgery, Quality of Life, Impairment of Work, Cancer and Death will be analyzed.

Functions

This solution contains a wide range of entry forms for easy registration of relevant patient information.

Diagnostic Criteria
Environmental factors
Hepatitis/HIV
SIBDQ
SF-12
WAPI
Quality of Care
FACIT Fatigue Scale
Clinical Assessment
Harvey Bradshaw
SCCAI
EQ-5D-3L
PUCAI
PUDAI
Biological therapy
Pregnancy
Blood sample
Surgery
Cancer
Death cause
Severe relapse

Export of data to different formats for further examination.

Purpose

To build a consistent datasource for research in Inflammatory bowel disease (IBD). To provide a platform for international research units to share data across the world in a secure and solid way.

Overview of countrys participating in EPICOM from year 2010

Australia

China

Cyprus

Czech Republic

Denmark

Estonia

Faroe Islands

Finland

France

Greece

Greenland

Hungary

Iceland

Ireland

Israel

Italy

Lativa

Lithuania

Malta

Moldova

Poland

Portugal

Romania

Russia

Spain

Sweden

England

Croatia